WEBVTT
Kind: captions
Language: en

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Traditionally, patient advocates have
been very active supporting to individualize

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so that patients and caregivers are also advocating with

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politicians and healthcare professionals

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to improve living conditions of people 
 living with a disease.

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And in recent years, other areas, other working areas have emerged for patients advocates.

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Like, for example, digital health,

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health Technology Assessment or clinical
research is a bit, maybe areas,

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now patients advocates are starting to get involved.

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But there are some challenges that we have to face:

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first, the education and training is... we need to be more prepared

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we need to be more trained to develop our work in an effective way...

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or can to provide a patients inside in a
responsible way

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to where the difference less... effectively

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Also we need to deal with a certain type of mistrust

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of the scientific community or scientific community about the patient involvement in all this process.

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So we need to convince them about the value of the patient involvement in health processes.

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And also, finally, it is necessary to
implement evaluation proceeds

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in order to know better the potential valuable info about the patient involvement

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and also to define and decide methodologies and

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protocols to get better
patient participation in social and in

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technology assessment, clinical research of digital health.

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What I want to say, it is really important that the patient must be in the middle all the stakeholders

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must be focused on patient needs and try
to give solutions

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but we also should work with patients, not only for patients, we need to work with patients.

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and it's important to empower them to be more active and to promote them to help

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and to promote them to be more actively in the health, 
in the health care.

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In conclusion, what I will say is that if you are doing something for patient

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you have to do it with patients

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because we have the potential to be a great stakeholder in healthcare

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and we need to convince and we need to work with different stakeholders

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to do it in a properly way.

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So, let's continue networking 
and advocating for patients